The Gluten Free Neighborhood

Where folks meet at the corner of good health and appetizing cuisine.

Archive for July, 2008

I Have A Dream

Posted by Kathy Dee Zasloff on July 14, 2008

Well actually I have a lot of dreams…and these are my dreams for getting us beyond gluten free….

I dream that:

  • People will talk about grains as what they are: abundant grains and not what they are not: gluten free
  • One day in the not too distant future I will open cooking magazines and there will be delicious recipes that use abundant grains
  • It will be as important to be gluten intolerant as to test positive for celiac disease
  • My friends will understand how important it is for all of us to eat abundant grains rather that gluten based grains
  • There will be abundant grain breads in restaurants and I won’t have to take my bread every where so I can have sandwiches like everyone else
  • Culinary schools will have accurate information on the use of abundant grains and their importance
  • There will be delicious and reasonably priced abundant grain products in mainstream groceries
  • Wait-staff will know what I mean when I say I am gluten intolerant
  • People and professionals will know that abundant grains are healthier
  • There will be accurate, reasonably priced and common place testing for gluten intolerance as well as celiac disease
  • Abundant grains will be a mainstay and not “alternative” or “exotic” grains


Posted in Beyond Gluten Free | 1 Comment »

Is There More Celiac Disease or Better Awareness?

Posted by Kathy Dee Zasloff on July 14, 2008

In 2005 I was hunting for a recipe on the Today Show web site and saw a link to Celiac Disease (CD). As I was diagnosed as an infant with CD that caught my interest. Three years later with lots more links and experiences, there’s much more information for me and lots of other people.

Here’s some of what I learned in the beginning:

From June 28 to 30, 2004, The National Institute of Health convened a Consensus Conference to look at the prevalence of Celiac Disease in the United States. Having some previous experience in health related Government activities. I was in awe at the list of people who came together for the Consensus Conference. Clearly, this was a serious undertaking. Click here to go to the NIH Awareness Campaign

The NIH was interested in knowing:

  • How is celiac disease diagnosed?
  • How prevalent is celiac disease?
  • What are the manifestations and long-term consequences of celiac disease?
  • Who should be tested for celiac disease?
  • How is celiac disease managed?
  • What are recommendations for future research on celiac disease and related conditions?

There was one recommendation.

To educate physicians, dietitians, nurses, and the public about celiac disease by a trans-NIH initiative, to be led by the NIDDK*, in association with the Centers for Disease Control and Prevention. The first CD Awareness Campaign newsletter came out in the Fall of 2005.

*The National Digestive Diseases Information Clearinghouse (NDDIC) was given responsibility for developing the Celiac Disease Awareness Campaign. NDDIC is an information dissemination service of the NIDDK. The NDDIC was established in 1980 to increase knowledge and understanding about digestive diseases among people with these conditions and their families, health care professionals, and the general public. To carry out this mission, NDDIC works closely with a coordinating panel of representatives from Federal agencies, voluntary organizations on the national level, and professional groups to identify and respond to informational needs about digestive diseases.

I can tell that the awareness campaign is working. My friends send me articles, recipes from the news, or they ask me if I’ve seen this or that book, tv show or news item. Recently, a classmate of mine was diagnosed with Celiac Disease. She tested positive for CD and was clearly not prepared for the diagnosis. In fact, I don’t know that she was informed that she was being tested for CD. In addition to being told she tested postivie for CD, she was also told that she is a-symptomatic. That means she has “no symptoms.” I don’t know what her Dr. told her, but in my conversations with her it certainly didn’t sound complete. But at least she knows.

Remember, as of this date (July 14th, 2008) 95% of people with CD are undiagnosed.

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